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Vickie L Kenyon
- Female
- Littleton, CO
- United States
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Profile Information
- Hometown:
- Denver
- Role
- Parent
- About Me:
- Hi, I am a late in life mother to Victoria Rose 7 years old she was diagnosed Dec 27 2006 we spent over three years to find the correct diagnosis. I founded The Victoria Rose Rett Syndrome Society to get a Rett clinic put in at Children's Hospital Colo. I am just a parent with a vision wanting to do something to help all of the silent angels here in our state.
- Website:
- http://rettsyndromesociety.net
- Skype:
- Vickielynne
- Twitter Name:
- Victoria Rose
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Facilitated Communication is a very controvercial method that many people would argue does not fall under AAC, but I will respond as if it does.
I was asked to try FC with 2 students that I serviced who had Autism when FC was starting to become big news, around 1990. I read up on the subject and tried it with the 2 students. I quickly found that 1 of the students was not interested in typng/ involvment in the activity at all. The othe student was interested and started to cooperate. After a week or so of doing this technique, I told the parents that I did not see a reason to use it. The student who was interested in typing was typing on his own. What I provided him was typical instruction and guidence, not facilitation. The other student to this day does not use any method that has been tried for communication. And many have been tried.
The biggest problem that I see when I Iook at the situations such as the one you are asking about, it does seem odd that the student would be able to spontaneously type long dialogs of words that are spelled and gramatically correct without formal training. Definitely beyond my belief. Also, I look at the language understanding of the responses and must question the response comming from someone with very limited experiences.
I do want to clarify that I am not saying anyone is being deceptive, I don't know the situation.
I believe that girls with Rett Syndrome have a difficult time expressing themselves and having consistancy with output. I believe that we should assume competence to the level that someone has been taught and exposed. Often times FC shows people to be able to spell, write, create, when they have never been taught these things. It is unusual for individuals to read, write and create to a sofisticated level when they were never taught or exposed to the pocess.
Today we have many ways for individuals to access communication devices such as eye gaze and switches. I believe there is a way for everyone to communicate without the need to explore FC.
I am uploading a file I created with what I hope is links that explore both sides of FC.
These are just my thoughts,
Faith
I do think people on the Rett Girls AT Group would be interested in Victoria Rose's Video. I asked Sam how to post the videos I posted. If it is a youtube video what you do is copy and paste the embedded code into the message area and send. It was easy. If not a youtube I am not sure. I bet Sam would know.
Faith
I hope you consider posting about Victoria Rose's Communication and assistive technology that she has used. If you post on the Rett girsl AT group we can gather info into the same place. It would be helpful to the group to hear you ideas and thoughts on communication and how Victoria interacts and gets actively involved in her world.
Thanks,
Faith